ENDOMETRIOSIS- WHERE IS THE PAIN EXACTLY?

Where is your endometriosis proliferating? Does the location of endometriosis matter?

The answer is—yes! It absolutely matters. The location of your endometriosis can directly affect where you feel pain. It also plays a major role in fertility and overall health.

In most cases, endometriosis presents in the pelvic region. It can wrap around the fallopian tubes and ovaries, but may also affect other organs. Though rare, it can even appear in non-pelvic areas of the body.

Identifying the specific location of your pain can help your surgeon locate endometriosis cysts, lesions, and adhesions more accurately for removal. Being able to pinpoint where you're experiencing discomfort also assists doctors in determining whether your symptoms are caused by endometriosis or by something else entirely. This makes diagnosis and treatment more precise and effective.

So, looking at my own symptoms, what can I tell you about my endometriosis—or possibly other conditions?

• Pelvic pain – Statistically, this is the most common sign of endometriosis. If the pain is isolated more to one side, it could indicate involvement of the fallopian tube or ovary. In my case, the pain is mostly on the right side of my pelvis.

• Painful urination – This one's tricky. It doesn't happen all the time, but when it does, it’s extremely painful. You still need to consult a doctor for a proper diagnosis. You may suspect it might be IBS-related, but that’s just speculation. It could also be a urinary tract infection. Either way, it’s best to speak with your doctor about this.

• Painful gas – Sometimes, even passing wind can be so painful that it makes you fear the worst. A healthier diet might help rule out constipation or sensitivity to processed foods. But let’s be honest—given the current economic climate, it’s not always easy to eat clean. Diet is not only thing that could be the problem.

• Leg pain – While leg pain can occur, it’s usually not because endometriosis is growing in your legs. More often, it’s radiating pain from the pelvic or hip area. Personally, mine stems from the lower right pelvis, and I’ve noticed that endometriosis tends to regrow in this area even after previous removals.

As for my other symptoms—things like sinus issues, flu-like symptoms, and anxiety—I’ve learned over time that not everything is related to endometriosis. You really do start to recognize the difference. Still, whenever you’re unsure, that’s a clear sign to consult a specialist/ doctor. Not all pain is caused by endo, and sometimes, it could be a sign of something more urgent that needs immediate medical attention.

Ultimately, the body is not separate organs functioning on their own. It is all interconnected. Listen and nurture. I have said it before and I will say it again, 'if you don`t listen to what your body has to say it will shout louder with time until that's all you hear.' Endo pain is different, it`s loud already.

I hope you endo warriors can silence the pain if not forever than at least for today. To listen to more than just pain. To listen to beauty and strength and joy and restfulness. Peace...